AUSTRALIAN HAEMOCHROMATOSIS REGISTRY
WHAT IS THE REGISTRY?
AUSTRALIAN HAEMOCHROMATOSIS REGISTRY
WHAT IS THE REGISTRY?
The Australian Haemochromatosis Registry is a national collection of de-identified data from people in Australia with haemochromatosis. Haemochromatosis is a genetic disorder influencing dietary iron absorption, which if left untreated, can lead to serious chronic health problems.
The success of the Australian Haemochromatosis Registry depends on the willingness of individuals to join and allow their de-identified data to be used by researchers. The more people register, the richer the pool of information available to researchers.
WHY IS THE REGISTRY IMPORTANT?
The Registry will ultimately lead to better health outcomes for individuals with haemochromatosis, their families and others in the community, by enabling research into the impact of too much iron on health and well-being.
The success of the Australian Haemochromatosis Registry will depend on the willingness of individuals with the condition to join and allow their de-identified data to be used by researchers.
I AM SOMEONE WITH HAEMOCHROMATOSIS
Your help in sharing de-identified data is so valuable in so many ways
I AM A HEALTHCARE PRACTITIONER
We rely on your support to make this research project successful
I AM A RESEARCHER
Find out about submitting your proposal for review and assessment
WHO SUPPORTS US?
OUR PARTNERS
